I'm very sorry to hear that you are having so much pain. I would recommend that you go back and see your neurosurgeon
. It sounds like there is a good reason for your chronic nerve pain (history of spinal bifida with known tethering of cord and multiple surgeries), so I don't think that any of your doctors
are going to be accusing you of "taking the easy way out."
In fact it sounds like you have been doing all of the right things up to now. For example, you have been staying in regular contact with the neurosurgeon, and you have been going regularly to the pain clinic, which has been attempting to control your pain with various rounds of medications. Right now you are on fairly high doses of all the right kinds of medications, so I don't think there is anything obvious that can be done to make a big difference here with different medications.
Therefore, I would recommend that you go back and see your neurosurgeon and let them know how things are going. It sounds like at your last visit they left the possibility of a repeat surgery
open, and this might be the time to discuss that option again and see if it might still be recommended.