Interstitial cystitis can carry some very difficult to deal with symptoms. Patients with interstitial cystitis do often have other conditions that they deal with. Hand edema (swelling of the hands) is not a symptom known to occur with interstitial cystitis. Symptoms of interstitial cystitis typically are bladder pain with filling or emptying, urinary frequency, and urgency, and needing to urinate at night. Edema, whether it be in you hands or legs is usually caused by fluid escaping from your blood vessels that is not returned to circulation. Many different factors can contribute. For example you could have low protein in your blood. This can result in fluid leaving the blood vessels and collecting in the skin. Some people experience hand swelling in the winter when their hands get cold and then warm up when they come inside. There are other possibilities all of which would need to be sorted out by your doctor
. I suggest you schedule an appointment with your primary care physician
, whoever you see for your interstitial cystitis. He or she can perform a detailed history and perform a thorough physical exam. Perhaps your doctor will order some blood work that may show why your hands are swelling. Good luck.