{"id":18021,"date":"2019-01-07T13:37:58","date_gmt":"2019-01-07T18:37:58","guid":{"rendered":"http:\/\/thepapergown.zocdoc.com\/?p=18021"},"modified":"2023-03-03T15:50:25","modified_gmt":"2023-03-03T20:50:25","slug":"closing-the-race-gap-in-prenatal-care","status":"publish","type":"post","link":"https:\/\/www.zocdoc.com\/blog\/healthcare-trends\/closing-the-race-gap-in-prenatal-care\/","title":{"rendered":"Closing the Race Gap in Prenatal Care"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Midwife Jennie Joseph prepares her patients for childbirth like she\u2019s \u201csending folks onto the battlefield.\u201d The battlefield is the hospital. Joseph cares for a wide variety of patients, but she\u2019s particularly attuned to black mothers. She knows they\u2019re more likely to have negative experiences in the healthcare system: being ignored by nurses, reporting pain that goes untreated, watching doctors glance nervously at their partners and enduring other forms of subtle and not-so-subtle discrimination. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">Joseph gives these women what she calls \u201csneaky things,&#8221; tips to ensure better care once they reach the hospital. She recommends specific doctors with lower C-section rates and friendly nurses she knows personally. She tells patients never to show up alone \u2014 they should always have someone to advocate on their behalf. And when contractions start, she advises them to \u201cstay outside (the hospital) for as long as you can. Walk the grounds, stay in the parking lot until the last minute, because if you bust in the door ready to go, you\u2019re going to get better care.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cYou have to learn how to navigate this mess if you want to survive,\u201d says Joseph, who trained in the U.K. before founding Commonsense Childbirth and <\/span><a href=\"https:\/\/thebirthplace.org\/meet-your-care-team\/\"><span style=\"font-weight: 400;\">The Birth Place<\/span><\/a><span style=\"font-weight: 400;\"> in Orange County, Florida. \u201cAnd because you\u2019re in dire jeopardy for not surviving, let me give you the straight skinny so you can be prepared and have some agency around this crap.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Joseph isn\u2019t being hyperbolic. Preparation, she emphasizes, can save a woman\u2019s life.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">In the U.S., women die during childbirth at a higher rate than in any other developed nation. Between 1990 and 2013, <\/span><span style=\"font-weight: 400;\">the U.S. maternal mortality rate more than doubled, jumping from an estimated 12 to 28 maternal deaths per 100,000 births, according to <\/span><a href=\"https:\/\/www.who.int\/bulletin\/volumes\/93\/3\/14-148627\/en\/\"><span style=\"font-weight: 400;\">a report by the World Health Organization<\/span><\/a><span style=\"font-weight: 400;\">. About half of those deaths were preventable.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">The outcomes are significantly bleaker for black mothers in the U.S., who die at three to four<\/span><span style=\"font-weight: 400;\">\u00a0times the rate of white mothers. Forty\u00a0black women died per 100,000 births between 2011 and 2014, compared to 12.4 deaths per 100,000 births for white women,\u00a0<\/span><a href=\"https:\/\/www.cdc.gov\/reproductivehealth\/maternalinfanthealth\/pregnancy-mortality-surveillance-system.htm\"><span style=\"font-weight: 400;\">according to the Centers for Disease Control and Prevention.<\/span><\/a><span style=\"font-weight: 400;\"> A study in the <\/span><a href=\"https:\/\/ajph.aphapublications.org\/doi\/10.2105\/AJPH.2005.072975\"><i><span style=\"font-weight: 400;\">American Journal of Public Health<\/span><\/i><\/a><span style=\"font-weight: 400;\"> examined five common, life-threatening complications for pregnant women. While black women weren\u2019t necessarily at a greater risk for the complications themselves, they were two or three times more likely than white women to die from those complications. \u201cThis increased risk of pregnancy-related death among black women,\u201d study authors wrote, \u201cis independent of age, parity or education.\u201d <\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cThe risk factor,\u201d Joseph tells me, \u201cis being a black woman.\u201d<\/span><\/p>\n<hr class=\"squiggle\" \/>\n<p><span style=\"font-weight: 400;\">It\u2019s not a new phenomenon. While maternal mortality rates in the U.S. fell overall between 1935 and 2007, maternal health risks for black women steadily increased,<\/span> <a href=\"https:\/\/www.hrsa.gov\/sites\/default\/files\/ourstories\/mchb75th\/mchb75maternalmortality.pdf\"><span style=\"font-weight: 400;\">according to a report by the U.S. Department of Health and Human Services<\/span><\/a><span style=\"font-weight: 400;\">. And although infant mortality decreased across all racial and ethnic groups between 1960 and 2011, it decreased the most among children born to white women, <\/span><a href=\"https:\/\/www.marchofdimes.org\/March-of-Dimes-Racial-and-Ethnic-Disparities_feb-27-2015.pdf\"><span style=\"font-weight: 400;\">according to the March of Dimes<\/span><\/a><span style=\"font-weight: 400;\">. As a result, racial gaps widened: As of 2010, black women lost infants at more than twice the rate of white women. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cWhen you\u2019re talking about maternal health in the U.S., obviously a major part of the issue is the racial disparity and being upfront and honest about that,\u201d says Elizabeth Dawes Gay, co-director of <\/span><a href=\"https:\/\/blackmamasmatter.org\/about\/\"><span style=\"font-weight: 400;\">Black Mamas Matter Alliance<\/span><\/a><span style=\"font-weight: 400;\">, an organization that sponsors research, education initiatives and advocates for policy change. \u201cI\u2019ve seen people posing questions like, <\/span><i><span style=\"font-weight: 400;\">Oh, what could it be?<\/span><\/i><span style=\"font-weight: 400;\"> You know what it is. Just name it. Let\u2019s talk about it.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">For Gay, that means talking about openly about racism, and the countless stories she hears from women of color across the country, detailing their experiences with healthcare providers. One women in Louisiana told Gay about the time her doctor called her an \u201cugly monkey.\u201d <\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cThis is a white, male professional calling a black woman an ugly monkey,\u201d says Gay. \u201cIn what world is that appropriate? This is what black women are dealing with; it\u2019s also how black women are treated in a variety of spaces. We encounter racism on a daily basis.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">It&#8217;s racism, some say, that lies at the<\/span><span style=\"font-weight: 400;\">\u00a0root of well-documented differences in pain treatment for black and white women. Patient anecdotes and academic research lend credence to this idea.\u00a0<\/span><\/p>\n<p>For a 2017 series called <a href=\"https:\/\/www.propublica.org\/series\/lost-mothers\">Lost Mothers<\/a><i>, <\/i>ProPublica and NPR collected hundreds of stories from black women who\u2019d dealt with healthcare discrimination, including many instances of doctors ignoring their reports of pain.<\/p>\n<p><span style=\"font-weight: 400;\">A <\/span><a href=\"https:\/\/academic.oup.com\/painmedicine\/article\/13\/2\/150\/1935962\"><span style=\"font-weight: 400;\">2012 analysis of 20 studies<\/span><\/a><span style=\"font-weight: 400;\"> found that black patients were 34 percent less likely to be prescribed opioids for pain conditions <\/span><span style=\"font-weight: 400;\">like backaches, abdominal pain and migraines<\/span><span style=\"font-weight: 400;\">.<\/span> <a href=\"https:\/\/journals.plos.org\/plosone\/article?id=10.1371\/journal.pone.0048546\">Both experimental and observational studies<\/a>\u00a0suggest that many people, including physicians, tend to assume black people experience less pain than white people in the same scenarios.<\/p>\n<p><span style=\"font-weight: 400;\">Researchers are also looking into the <\/span><a href=\"https:\/\/www.npr.org\/2017\/10\/28\/560444290\/racism-is-literally-bad-for-your-health\"><span style=\"font-weight: 400;\">physical and mental health effects<\/span><\/a><span style=\"font-weight: 400;\"> of the discrimination black women too often face inside and outside the exam room. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cThere\u2019s not a level playing field in terms of the amount of stress black women are coming to care with,\u201d says Monica McLemore, assistant professor of nursing at the University of California, San Francisco. She points to <\/span><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC2861506\/\"><span style=\"font-weight: 400;\">a 2010 study<\/span><\/a><span style=\"font-weight: 400;\"> suggesting that black women may age at an accelerated rate due to the effects of stress. \u201cA lifelong exposure to having all sorts of stressors \u2014 particularly stressors that are related to race and racism \u2014 (and) you have a real recipe for disaster when you come to pregnancy.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cIf we had said 400 years ago that people with blonde hair and blue eyes were less valuable, trust me, they would have bad birth outcomes,\u201d says Dr. Joia Crear-Perry, a physician and the founder and <\/span><span style=\"font-weight: 400;\">president of the National Birth Equity Collaborative<\/span><span style=\"font-weight: 400;\">. \u201cThey would be obese, they would have higher rates of poverty, we would create structures and systems that devalue them.\u201d<\/span><\/p>\n<hr class=\"squiggle\" \/>\n<p style=\"text-align: left;\"><span style=\"font-weight: 400;\">In 2018, Serena Williams and <\/span><a href=\"https:\/\/www.vogue.com\/article\/beyonce-september-issue-2018\"><span style=\"font-weight: 400;\">Beyonc\u00e9<\/span><\/a> <span style=\"font-weight: 400;\">spoke publicly about their own life-threatening pregnancy complications. In an <\/span><a href=\"https:\/\/www.cnn.com\/2018\/02\/20\/opinions\/protect-mother-pregnancy-williams-opinion\/index.html\"><span style=\"font-weight: 400;\">opinion piece for CNN<\/span><\/a><span style=\"font-weight: 400;\">, Williams says that while she had an easy pregnancy, an emergency C-section \u201c<\/span><span style=\"font-weight: 400;\">sparked a slew of health complications that I am lucky to have survived.\u201d At one point, when she felt shortness of breath, which she thought might be related to past blood clots, Williams tracked down a nurse, <\/span><a href=\"https:\/\/www.vogue.com\/article\/serena-williams-vogue-cover-interview-february-2018\"><span style=\"font-weight: 400;\">who suggested that perhaps she was confused from her pain meds<\/span><\/a><span style=\"font-weight: 400;\">. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cI think that really shone a light on how not-believed patients are,\u201d says McLemore. \u201cPart of not believing people, I believe, is directly attributable to racism, to not believe black women when they talk.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Williams\u2019 and Beyonc\u00e9\u2019s experiences buck the notion that racial differences in maternal care are socioeconomic at their core, or that they\u2019re ultimately a product of poor patient health. After all, Williams is an elite athlete. Meanwhile, research shows that infant mortality rates are <\/span><a href=\"https:\/\/www.brookings.edu\/blog\/social-mobility-memos\/2016\/10\/21\/6-charts-showing-race-gaps-within-the-american-middle-class\/\"><span style=\"font-weight: 400;\">higher for babies born to middle-class black mothers<\/span><\/a><span style=\"font-weight: 400;\"> than to white mothers who never attended high school. Still, maternal health outcomes are even worse for poor women.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cEverybody suffers this [racial]<\/span> <span style=\"font-weight: 400;\">disparity, but it\u2019s a lot more profound in people who have limited resources and limited options for their healthcare, which is the population I work with,\u201d says Dr. Michael Lindsay, an ob-gyn at Grady Memorial Hospital in Atlanta. \u201cIn Georgia, we have geographic pockets of physician-shortage, and I think there\u2019s a role midwives and doulas can play where there is a shortage of care.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Joseph\u2019s Florida practice employs peer educators, lactation specialists and doulas. Together, they follow the \u201cJJ Way,\u201d a comprehensive system of prenatal care created by Joseph to reduce racial inequality and improve birth outcomes overall. The JJ Way covers a broad array of issues that pregnant women, particularly black pregnant women, commonly face, including those related to financial hardship. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cComprehensive care mitigates racism,\u201d says Joseph. \u201cAnd what\u2019s more, it eliminates the disparity. \u00a0I\u2019m providing prenatal care, but I\u2019m also doing insurance triage,\u201d she says. \u201cWe\u2019ll make sure you get [Medicaid] if you\u2019re eligible and we\u2019ll make sure you understand your insurance.\u201d<\/span><\/p>\n<p>Joseph says the JJ Way delivers results. <b>\u201c<\/b><span style=\"font-weight: 400;\">When we do our work with our team,\u201d she says, \u201cthe women go to term, the babies are fat and the moms are breastfeeding. It\u2019s that simple. And anybody can do it. It\u2019s not a midwifery model, it\u2019s a patient-centered care model.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Among children of black mothers, the leading causes of infant mortality are low birth weight and preterm birth (meaning earlier than 37 weeks).<\/span><span style=\"font-weight: 400;\">\u00a0Independent research found that Joseph\u2019s care model <\/span><a href=\"https:\/\/www.commonsensechildbirth.org\/wp-content\/uploads\/2011\/05\/The-JJ-Way%C2%AE-Community-based-Maternity-Center-Evaluation-Report-2017-1.pdf\"><span style=\"font-weight: 400;\">reduced the incidence of low birth-weight babies in at-risk populations<\/span><\/a><span style=\"font-weight: 400;\"> and eliminated racial differences in preterm-birth rates in Florida&#8217;s Orange County, where Joseph practices.\u00a0<\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cThe black women were doing better than the white women in the county,\u201d Joseph says. \u201cCome on, now, where are you going to see that statistic ever in the U.S.?\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Joseph also continues to see patients after they give birth, screening for everything from hemorrhaging to depression. Postpartum care, she says, was standard when she worked in Europe, but not in the U.S. It\u2019s an area of care where midwives and doulas tend to take a leading role. It\u2019s also care that many women don\u2019t have access to. \u201cAll of the ills that are postpartum have no home and nobody watching,\u201d she says.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Improving maternal care overall will reduce prejudicial differences, says<\/span> <span style=\"font-weight: 400;\">Crear-Perry. \u201cCountries that value women in general and support women when they\u2019re pregnant have better health outcomes than we do,\u201d she says. \u201c<\/span><span style=\"font-weight: 400;\">If white women moved to Finland, places that have more freedom for women to have access to education and equal pay, they would do better.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Though McLemore is reluctant to put the onus on women, she thinks a patient-led movement might do the trick: \u201cIf women want better, we\u2019re going to have to demand better, and that\u2019s an unfair demand because when you\u2019re a new parent, the last thing you have time to do is start an advocacy agency, but I think that\u2019s what it\u2019s going to take.\u201d<\/span><\/p>\n<p><span style=\"font-weight: 400;\">In December, Congress passed the <\/span><a href=\"https:\/\/www.congress.gov\/bill\/115th-congress\/house-bill\/1318\/text\"><span style=\"font-weight: 400;\">Preventing Maternal Deaths Act<\/span><\/a><span style=\"font-weight: 400;\">, now headed to the president\u2019s desk. The legislation aims to help \u201cwomen with disproportionately high rates of maternal mortality,\u201d its goal being \u201cto eliminate disparities in maternal health outcomes for pregnancy-related and pregnancy-associated deaths.\u201d<\/span> <span style=\"font-weight: 400;\">If signed into law, it would give states funding to track and investigate the deaths of new and expectant mothers. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">\u201cThese are completely preventable deaths and that\u2019s why the disparity is so problematic,\u201d says McLemore. \u201cBecause we actually know what to do.\u201d<\/span><\/p>\n<hr \/>\n<h1 class=\"p2\" style=\"text-align: center;\"><span class=\"s1\">Ready to book a doctor&#8217;s appointment? Visit <a href=\"https:\/\/www.zocdoc.com\/\"><span class=\"s2\">Zocdoc.<\/span><\/a><\/span><\/h1>\n","protected":false},"excerpt":{"rendered":"<p>For black women in the U.S., having a baby comes with disproportionate health risks. Experts are calling for change. <\/p>\n","protected":false},"author":11,"featured_media":17840,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[229],"tags":[134,123,94,93,155,122,75],"class_list":["post-18021","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-healthcare-trends","tag-gender","tag-maternal-health","tag-pregnancy","tag-public-health","tag-race","tag-reproductive-health","tag-womens-health","reviewer-dr-nassim-assefi","specialist_by_city-ob-gyn"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Closing the Race Gap in Prenatal Care - Healthcare Trends<\/title>\n<meta name=\"description\" content=\"For black women in the U.S., having a baby comes with disproportionate health risks. 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